I exist separate and apart from what happens to me. This body, this brain, are damaged. They don't work right. I make simple and silly mistakes that I am learning to laugh at.
- Forgot to add soap to the dishwasher. Oh, well. The cups were upside down anyway.
- Things left in random places become a game of hide and seek.
- Stuttering and forgotten words can become a game of charades.
My Rules of Immaturity:
- Don't be in charge. Assign a loved one or friend to make sure everyone is together. They can take over the thinking and you can experience. It's like having a designated driver, only you will have a designated adult.
- Have a plan. A destination and a goal. Make sure everyone is on the same page. You will become distressed if things change or someone changes things. If that happens allow space to realign your thoughts and breathe through it.
- Keep the time short. Don't expect too much of yourself. New events are more fatiguing than familiar events and places.
- Touchstones. Have familiar things to keep you grounded. Comfortable clothes, soft materials. I have a wrap that goes everywhere. It like a comfort blanket. It helps me feel safe and the material is soft and helps me to connect if I become distressed.
- If it's not fun, stop. If your activity is stressful or upsetting don't continue doing it. Have a plan to reconnect if things become too much. Make sure your advocate, the designated adult, understands your signs of distress and that they are prepared to leave at any time.
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