No consistent trend can predict the cause or solution. No comprehensive list of symptoms can tell sufferers when to be tested early. Even diagnostic tools are concerning because it is a major event to have a biopsy done. My surgeon simply removed as much of the tumor as possible and sent a piece for evaluation.
The sadness weighs on us all as we are a small community, a few in each city spread over the world. Not loud, many of us have sound sensitivity. Not vocal, speech is difficult as we stutter, misspeak, forget words and lose track of conversation. Not in the public eye or making big waves because our functionality suffers. So, we simply fade away into obscurity with only our loved ones aware of the loss of light to the world.
This song came to my mind today. It is a song that reminds me that I am not alone and we are all the poorer for losing a light in our world.
Amy, my friends, those who have lost loved ones, remember "When you're alone, you're not alone. Not really alone."
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