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Top things to not say to a brain tumor patient...

So over the past few months I have experienced some pretty dismissing comments. I'm actually amazed that people would say these things ...

Showing posts with label goals. Show all posts
Showing posts with label goals. Show all posts

Tuesday, June 28, 2016

What Makes a Champion

Every person struggles with challenges. These challenges divert, dissuade, and detract from the goals and life we work to create for ourselves. You choose the level to which your challenges either pull you back, or propel you forward. An arrow cannot work without being drawn back. this may seem like a loss or lack of progress. For the arrow, it is part of the journey, propelling it forward, driving it toward its goal.

I find myself encouraged by videos and pictures that show challenge and triumph. Please enjoy. Yes, its a commercial- I don't care its a great story.

Additionally I find myself loving the following movie about the beauty of triumph in the face of challenge. Butterfly Circus.

Nic Vijicic is a motivational speaker and advocate. I find myself more inspired today with his perspective and voice. I am so grateful that there are people like this in life that teach me to reach, to strive and to finally glory in reaching my goals.

God bless and keep you in His arms.

Sunday, February 14, 2016

Second Chances

When, in the course of your life, you are given an opportunity to have a second chance, to rewrite your story, to rethink who and what you expect and believe yourself to be, it leaves a sense of being unwilling to settle for the status quo. Talking to a dear friend of mine, we discussed whether this is my life now. She also has health concerns and is frustrated that her primary care doctor is not taking her concerns seriously.

"I refuse to accept that this is my life now; that I will always hurt and this is just the way it is."

I love that. I love that she said that and that her focus is on making a better life. One where she doesn't settle for the easy answers.

 

I am facing many changes. With my limitations I cannot go back to my career. I cannot offer support and make decisions with enough proficiency to help others the way I did prior to surgery. It is even possible that just prior to surgery the extreme levels of pressure my brain was under from low CSF and the tumor were creating a significant amount of damage. (We are working to find answers now.)

I am unwilling to accept the easy answers. I am on disability, that is a reality I am facing right now. Facing my challenges head on has forced me to really look at where I am. This is not where I am content to stay.

I challenge myself regularly now. It is simple and maybe not what others may consider challenging, but it is mine. My journey. My path. It doesn't have to measure up to any other expectations. I fully own my journey and I am coming to appreciate all that I am learning.



Second chances offer opportunity to drastically change your life path.

I am embracing this change.

I am working to address this in many ways; both personally and in my relationships with others. I refuse to accept the polite and unspoken things that I, in an effort to avoid confrontation, generally avoid. I speak up. I say what is on my mind, and I have little tolerance for taking the easy route.

I am looking at needing a lot of job retraining and rehabilitation. I can accept this. I can look at it as a barrier or as a challenge to be overcome. I am currently working with a vocational rehabilitation councilor. I don't have many options, and all require more healing and some education.

I am refusing to let my relationships just be comfortable. I want no regrets, no unspoken conversations. I want to talk about the hard stuff and find resolution. I am confronting past hurts and healing traumas pushed aside by other concerns.

I am living fully in the moment and embracing all the time I have. I practice yoga, mindfulness, and make every effort to remain emotionally present in my own space. If I have pain, I accept it. Joy, I embrace it.


I am not perfect. I have many flaws that I am aware of and working to change. I am so grateful for this chance. For the opportunity to learn and grow in this way. My days are not easy. The pain is hard; both the emotional and physical pain. I would not wish this path on anyone, but after what I have gone through, I am grateful. I am blessed. With my challenges I am working to get to where I can say, fully and with every intent of my heart,

"I refuse to accept that this is my life now."

I will be better. I will do better. I will live the life I have been granted and leave the world better for my very life. God is good, may He bless and keep you.

Thursday, January 28, 2016

"Please, explain."

It drives me nuts when people ask me what it feels like, why I do things a certain way or why my mind works a certain way. Living it is hard enough. Trying to explain is like being blind and trying to describe a sunset. I have no point of reference for how this makes me feel or what it feels like because it just is. Living my life now is enough of an adventure.

(started everything.)

 
My life as it now stands.
 
I still have to keep writing it maintains my sanity.

 
 
and lastly...
 

Get the picture?

Wednesday, January 6, 2016

Full Custody

In my journey to become whole, I found the following:

The Write Stuff by author Christy Truitt

He demanded full custody.

The battle over "things" pulled on flesh. A living, breathing, creation in the center of the split. It was the only thing he wanted. The one thing he would not release. 

He knew her life consisted of the line item of the settlement statement. All she knew. Everything she was. 

And he wanted it.

She rolled up her sleeves, took off her earrings, and came out swinging.

You'd think this was a divorce case. A child straddling the growing divide between her parents. About to fall in the middle, his legs unable to stretch anymore.

But no, dear ones. I don't write about a child.

I write about you.

Your identity. Your soul. The very you that is you.

You are the only one who can fight for you. You have sole custody of your choices, actions, words, intentions. Others will come to claim their rights. Woo you with all the other dreams your heart demands only to leave this in the small print, the soft charge. You sign away before you even know to fight.

But fight you must.

No one can separate you from you except...you.

You're worth fighting for.

Now hold my earrings...


 

You are worth it. God is cheering you on. Get to it!